Visual ODLs: Co-Designing Patient-Generated Observations of Daily Living to Support Data-Driven ...
summary
A visual library of 72 pictograms and a 4x3 storyboard template is co-designed with 13 teen–parent pairs (11 solid tumors, 2 sickle cell) to elicit Observations of Daily Living; sessions produce interactive storyboards and sketched icons that teens use to map activities, moods, and symptoms and parents to add time/location metadata. Visual storyboards reliably scaffold richer narratives, teens favor video for complex symptoms, families see roles for distributed tracking, and clinicians raise concerns about review burden for rich media.
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chapters (8)
- 0:00Introduction and motivation
- 3:57Research question and co-design approach
- 6:28Co-design sessions with teens and parents
- 8:59Findings on visual storytelling
- 12:55Communicating with doctors
- 14:41Implications for family informatics
- 16:07Conclusion and future work
- 16:35Q&A session
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