Building an ethical data infrastructure
summary
A research infrastructure called the Digital Observatory implements privacy and security by design, uses professional software engineers, and secures data bank ethics approval that separates bank-level and project-level ethics. It curates reusable datasets so researchers get tidy data ready for analysis instead of building quick prototypes. Current collections include Australian Twittersphere (~500,000 accounts, ~20 million tweets per month) and an ad hoc 2019 federal election: 1,500 candidates, ~1.8 million tweets and the platform is operational and supporting multiple projects.
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chapters (18)
- 0:00Introduction
- 1:10Acknowledgement
- 4:30Problems
- 6:45Henrietta Lacks
- 7:52HeLa Cell
- 9:38Henriettas case
- 12:47Digital breadcrumbs
- 15:06Code of ethics
- 18:05Mission
- 19:30Key stakeholders
- 21:41Principles
- 22:24Trust
- 23:13Process
- 25:01Summary
- 26:51Data bank
- 27:12Adhoc collections
- 27:59Research projects
- 28:41Thank you
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