Streamlining health data collection with FHIR at Sciensano
summary
Sciensano standardizes research data by adopting Clinical Building Blocks converted into FHIR logical models, claiming about 60% of existing data concepts map to ten blocks and the Laboratory Test Results block hits 41 projects / 96 DCDs. The team copies Dutch ZIB content, renames terminologies to Belgian namespaces, generates FHIR profiles and an implementation guide on Simplifier, and builds a FHIR endpoint to accept document bundles for lab results with a pilot planned. Major constraints are multilingual maintenance, manual syncing with ZIBs, and anonymization requirements.
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chapters (16)
- 0:00Introduction and speakers
- 1:06Sciensano’s health data challenges
- 3:15Clinical building blocks concept
- 6:22Adapting Dutch building blocks
- 8:53Implementation guide structure
- 10:16Laboratory test results pilot
- 12:40Challenges in standardization
- 13:00Multilingual support approach
- 18:21Clarifying implementation guides
- 21:26Value set constraints in FHIR
- 28:37Value set constraint language
- 30:25Term filtering in VCL
- 34:20VCL syntax and examples
- 39:19VCL use cases and open issues
- 42:30VCL implementation status
- 43:10Q&A on VCL use cases
