Data Trusts: What, Why, How?
summary
Data trusts are legal fiduciary arrangements that take control of data rights away from fragmented consent models and give trustees enforceable powers to manage access, audit users, and revoke sharing immediately. They rely on the trust instrument and two enforceable duties — duty of loyalty and duty of care — to prevent boards or companies from monetizing a community’s dataset. Examples include DNA and Fitbit scenarios, and the model scales from hundreds to a million beneficiaries. Practical questions about trustee selection, exit rights and governance remain open.
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chapters (10)
- 0:00Intro
- 0:52Collective Privacy
- 2:49Privacy as control over the appropriate flow of information for a given context. Based on Helen Nissenbaum's understanding of
- 4:44Current approaches to privacy
- 10:05Externalities of data sharing
- 14:13Who Decides?
- 19:07Fiduciary Duties
- 22:16Collective Bargaining Power
- 24:14How are decisions made? How do we exit a data trust? Do we elect or appoint trustees? What if the data subject is unknown?
- 28:13How you can help!
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