Donating Health Data After Death — A Good Idea?
summary
Donating health records after death aims to create lifetime health datasets to improve diagnosis and public‑health research by collecting and stitching fragmented medical records and storing them long‑term. The work presents secure cloud repository pipelines and ETL cleaning to assemble records, reports pilot benefits for retrospective TB and rare‑disease studies, and notes obstacles: irreversible consent, poor record quality, low donor uptake, high curation costs, and password/cloud/jurisdiction challenges for long‑term storage.
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